Special Events & Charity Events

 

        This is a Video about Reese's Life with MLD

             
 

Metachromatic Leukodystrophy - MLD

A special event to benefit Reese Behnken will be held on Aug. 1 at 12:30 p.m. at the 16th Street Park in Bayonne, NJ.  Reese is the daughter of a Howell firefighter and she is fighting a rare condition called metachromatic leukodystrophy.  MLD is a life-threatening genetic condition in which the body is missing a key enzyme, which inhibits the necessary signals to be sent throughout the body.  Researchers are seeking a cure for MLD.  For more information, visit www.mldfoundation.org.  Howell resident Chris Acevedo and one of his fellow NY/NJ Port Authority police officers have organized a fun-filled event to offer a day of laughs for friends and family while raising money for MLD research.  There will be a soccer tournament, games, face painting, a DJ and a raffle.  

The story sent to me by a PA Police Officer of this little girl's battle of her life touched me and I created this web page on Wednesday, July 22, 2009 to help her win it.  It is great to see that members of our PA Police will help their neighbors in time of need........Webmaster

 
 

 

 

 

 

 

 

 

 

 

 


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Last modified: Saturday, August 07, 2010 07:19:00 AM